Baby Proves Doctors Wrong, Celebrates Her First Birthday

Balloons with the message “if found please consider donating to NKH research” were set free in honor of Elizabeth Robertson, who celebrated her first birthday Sunday.

NKH stands for non-ketotic hyperglycinemia, which is a rare and incurable brain disease.

Elizabeth, known as Lizzie to her loved ones, wasn’t supposed to make it to her first birthday party.

“I wake up every day and thank God that she’s still with us,” said Lizzie’s mom, Jennifer.

Lizzie celebrated her birthday with cake, presents and a lot of love and support. About 50 people made it to this milestone in her life.

Jennifer Robertson said Elizabeth has one to two seizures daily, receives therapy and takes five medications daily.

“She can’t hold anything in her hand and she can hold her head up a little bit,” Jennifer Robertson said. “We are blessed she is still here.”

The balloons released by family and friends was also done in honor of four children who died in 2012 from NKH.

Video below aired when Elizabeth was a newborn a year ago. Click here for the story.